Jump to content

TigerWoodsLibido

Night Shift
  • Posts

    18092
  • Joined

  • Last visited

  • Days Won

    35

Everything posted by TigerWoodsLibido

  1. We do yes. It’s not too far from the hospital or the house.
  2. Yeah my brain implant RNS stimulator cyberware that I have works ok but it's not enough without lamotrigene. The operation to put in this experimental RNS was over $120k in total costs so I'm very grateful for all that being approved. Tho it was kinda me just agreeing to be a guinea pig for the operations. I scan my brainwaves and send the data in regularly so they can see how I have seizures up to like 15 a minute at times. Thousands weekly. Without lamotrigene, which costs like $500+ a bottle out of pocket, is simply not worth it. I'll just let my body fail instead if that's what it comes to. I'm grateful that my family lives in the tiny flat we have because so many people don't have that. The ones that walk in our alleyway at night...I know our family has it better, even if I can only put some cots in the livingroom for my kids for when they come over. Their mom decided to go her own way cuz she couldn't handle the stress of my seizure episodes along with taking care of 3 young kids. It was unfortunate but I just decided to remain stoic for my kids. My family here, my current wife and her mom are the most incredible people, along with my kids and @MR.SNOWMIZER @SilverFallsAndrew @Phil @Deweydog @TT-SEA @iFred @BLI snowman @Meatyorologist who have helped me get through some of the toughest parts of my life. With my kids coming over this weekend starting tonight, it's gonna be an adventure. I'm sorry if I forgot to mention someone before. Y'all are so very important.
  3. Huh? I'm confused. I just wanted to let y'all know that I might be having so many seizures that I won't be able to function.
  4. Wish me luck guys. My most important medication, lamotrigene, has still not been approved this time by the insurance company. I have taken this medication since late 2016 and haven't gone without it since a lengthy observation when I was at OHSU back in 2017. Needless to say, I was into status epilepticus when I was there for extended observation without the medication (it's different than clobazam, which is also important but not as much as lamotrigene). Once I took the medication it was a lot better. I still have lots of seizures but most of them are small and manageable. Some are shittier and I have to get down on the floor when I feel them coming on but those are rare. Without this medication, there is a pretty decent possibility of me slipping into status epilepticus and ending up in the hospital soon. My neurologist said that once it gets bad enough that I need to go into the hospital and they can maybe make it urgent enough to get a temporary supply. I'll try to have y'all stay updated but for now me and my family are worried. In the meantime, it's 50F and cloudy. If this is the last day where I have proper focus then I'm grateful it was a cool and pleasant one without excessive heat.
  5. 51F, blustery and the occasional shower. Nice and cool day. Cherishing these before we start counting up the 90F burgers between May and September.
  6. That ship steered right into the support beam power was flickering then it just goes full steam head on into it. Looks like a terrorist attack.
  7. In the next couple of decades, palm trees might become more prevalent in areas like the south Willamette Valley.
  8. Well y’all will get the bag that the Pac has made you so far going 4-0 to begin the tournament.
  9. Hell yeah! Some of the best 2 days of the year.
  10. Oh we're absolutely fuckked in the next decade at some point.
  11. Finally got the internet fixed. Took them days but better late than never. Hope y’all are well. Beautiful here in Springfield and 57F.
  12. 48F with clear skies. Hope y’all are having a nice night. Wish my internet would work but we have a wiring issue that the technician has to try to fix on Tuesday morning…ugh this sucks.
  13. You deserve it man. You're one of the most gracious people ever.
  14. 70F burger IMBY in downtown Springfield. Beautiful day.
×
×
  • Create New...