Yeah my brain implant RNS stimulator cyberware that I have works ok but it's not enough without lamotrigene. The operation to put in this experimental RNS was over $120k in total costs so I'm very grateful for all that being approved. Tho it was kinda me just agreeing to be a guinea pig for the operations. I scan my brainwaves and send the data in regularly so they can see how I have seizures up to like 15 a minute at times. Thousands weekly.
Without lamotrigene, which costs like $500+ a bottle out of pocket, is simply not worth it. I'll just let my body fail instead if that's what it comes to. I'm grateful that my family lives in the tiny flat we have because so many people don't have that. The ones that walk in our alleyway at night...I know our family has it better, even if I can only put some cots in the livingroom for my kids for when they come over. Their mom decided to go her own way cuz she couldn't handle the stress of my seizure episodes along with taking care of 3 young kids. It was unfortunate but I just decided to remain stoic for my kids. My family here, my current wife and her mom are the most incredible people, along with my kids and @MR.SNOWMIZER @SilverFallsAndrew @Phil @Deweydog @TT-SEA @iFred @BLI snowman @Meatyorologist who have helped me get through some of the toughest parts of my life. With my kids coming over this weekend starting tonight, it's gonna be an adventure. I'm sorry if I forgot to mention someone before. Y'all are so very important.
weather.us has cloud output for multiple levels of the atmosphere -- low, mid, high cloud cover. May be useful as the time draws closer. Having some high clouds would be a different ballgame compared to something like stratus.
Just gotta laugh at this. It's like someone or something is saying "how can we try to screw over as many people as possible"
Optimist in me says that maybe it's good that we are getting these kinds of model runs now. Get the horrid runs out of the way now?
I'm sorry to hear that, I am also fighting a losing battle over a prescription right now, and while its not for something as critical as seizures, I still need my medication to function. The crappy thing is that they approved it last year, but they switched pharmacy managers and now the new pharmacy manager won't approve it.
My daughter is on lamotrigene for her epilepsy (along with one or 2 other drugs) and the combined out of pocket if she didn't have insurance would be ~$2,000 per month. You can live in a really nice house in a good chunk of the country for that kind of money.
I hope you can get it figured out. From my own personal experience, there should be a way to fast track the reviews/approvals. For my insurance company, it was for the doctor to mark the request as "urgent" Unfortunately, for me it just meant them telling me "NO" that much quicker.
My prescription is $5k per year out of pocket, not something I can really afford to do.
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