Maybe I’m weird but I’ve always liked the early sunsets. The long evenings can be cozy. On the flip side I’ve always enjoyed the super late sunsets on the opposite side of the year too. I enjoy dynamism when it comes to daylight length throughout the year. To me it would be strange living at a lower latitude where daylight length and sun angle are more uniform year round. I realize this is just personal preference though.
Had a field trip to the Salmon Hatchery in Edmonds and got caught in one of the heaviest downpours I've ever seen as we were getting on the buses. I saw it coming on the radar and hurried everybody to the buses a few minutes early but about half the kids still got absolutely soaked. Truly some of the heaviest rain I've ever seen in Western Washington for about 3 minutes.
Wish me luck guys. My most important medication, lamotrigene, has still not been approved this time by the insurance company. I have taken this medication since late 2016 and haven't gone without it since a lengthy observation when I was at OHSU back in 2017. Needless to say, I was into status epilepticus when I was there for extended observation without the medication (it's different than clobazam, which is also important but not as much as lamotrigene). Once I took the medication it was a lot better. I still have lots of seizures but most of them are small and manageable. Some are shittier and I have to get down on the floor when I feel them coming on but those are rare.
Without this medication, there is a pretty decent possibility of me slipping into status epilepticus and ending up in the hospital soon. My neurologist said that once it gets bad enough that I need to go into the hospital and they can maybe make it urgent enough to get a temporary supply. I'll try to have y'all stay updated but for now me and my family are worried.
In the meantime, it's 50F and cloudy. If this is the last day where I have proper focus then I'm grateful it was a cool and pleasant one without excessive heat.
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