TigerWoodsLibido
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Posts posted by TigerWoodsLibido
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4 minutes ago, Chewbacca Defense said:I'm sorry to hear that, I am also fighting a losing battle over a prescription right now, and while its not for something as critical as seizures, I still need my medication to function. The crappy thing is that they approved it last year, but they switched pharmacy managers and now the new pharmacy manager won't approve it.
My daughter is on lamotrigene for her epilepsy (along with one or 2 other drugs) and the combined out of pocket if she didn't have insurance would be ~$2,000 per month. You can live in a really nice house in a good chunk of the country for that kind of money.
I hope you can get it figured out. From my own personal experience, there should be a way to fast track the reviews/approvals. For my insurance company, it was for the doctor to mark the request as "urgent" Unfortunately, for me it just meant them telling me "NO" that much quicker.
My prescription is $5k per year out of pocket, not something I can really afford to do.
Yeah my brain implant RNS stimulator cyberware that I have works ok but it's not enough without lamotrigene. The operation to put in this experimental RNS was over $120k in total costs so I'm very grateful for all that being approved. Tho it was kinda me just agreeing to be a guinea pig for the operations. I scan my brainwaves and send the data in regularly so they can see how I have seizures up to like 15 a minute at times. Thousands weekly.
Without lamotrigene, which costs like $500+ a bottle out of pocket, is simply not worth it. I'll just let my body fail instead if that's what it comes to. I'm grateful that my family lives in the tiny flat we have because so many people don't have that. The ones that walk in our alleyway at night...I know our family has it better, even if I can only put some cots in the livingroom for my kids for when they come over. Their mom decided to go her own way cuz she couldn't handle the stress of my seizure episodes along with taking care of 3 young kids. It was unfortunate but I just decided to remain stoic for my kids. My family here, my current wife and her mom are the most incredible people, along with my kids and @MR.SNOWMIZER @SilverFallsAndrew @Phil @Deweydog @TT-SEA @iFred @BLI snowman @Meatyorologist who have helped me get through some of the toughest parts of my life. With my kids coming over this weekend starting tonight, it's gonna be an adventure. I'm sorry if I forgot to mention someone before. Y'all are so very important.
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5 minutes ago, Sunriver Snow Zone said:
Probably poor timing to say this, but I'm shocked you didn't try to find a way to 1 up him like you did to Chris.
Huh? I'm confused. I just wanted to let y'all know that I might be having so many seizures that I won't be able to function.
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Wish me luck guys. My most important medication, lamotrigene, has still not been approved this time by the insurance company. I have taken this medication since late 2016 and haven't gone without it since a lengthy observation when I was at OHSU back in 2017. Needless to say, I was into status epilepticus when I was there for extended observation without the medication (it's different than clobazam, which is also important but not as much as lamotrigene). Once I took the medication it was a lot better. I still have lots of seizures but most of them are small and manageable. Some are shittier and I have to get down on the floor when I feel them coming on but those are rare.
Without this medication, there is a pretty decent possibility of me slipping into status epilepticus and ending up in the hospital soon. My neurologist said that once it gets bad enough that I need to go into the hospital and they can maybe make it urgent enough to get a temporary supply. I'll try to have y'all stay updated but for now me and my family are worried.
In the meantime, it's 50F and cloudy. If this is the last day where I have proper focus then I'm grateful it was a cool and pleasant one without excessive heat.
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51F, blustery and the occasional shower. Nice and cool day. Cherishing these before we start counting up the 90F burgers between May and September.
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44F and mostly cloudy.
0.56" of rain today. Nice.
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4 hours ago, Phil said:
Wtf the Francis Scott key bridge just collapsed into the Chesapeake. That’s like the American Legion Bridge of Baltimore..going to be many lives lost.
That ship steered right into the support beam power was flickering then it just goes full steam head on into it. Looks like a terrorist attack.
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Just now, TT-SEA said:
So much hatred for a simple form of vegetation that can obviously do well in our borderline Mediterranean climate. I think the people who have so much venomous hatred just don't like to be reminded of the reality of our climate. They want to pretend we are basically Montana.
In the next couple of decades, palm trees might become more prevalent in areas like the south Willamette Valley.
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1 hour ago, Omegaraptor said:
What’s the best vacation destination?
Southern Maui (Kihei not Lahaina)
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51F with some moderate rain.
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3 minutes ago, SilverFallsAndrew said:
Been raining all day here.
Same as here. We need it.
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49F with some moderate rain. 0.16” so far today.
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4 hours ago, Sunriver Snow Zone said:
F**k the Ducks, worst team in any sport. Go Washington state, every beaver fan needs to root for them! Only team that didn't abandon the pac12, wsu needs to prove that the remaining PAC2 did not deserve to be abandoned!
Well y’all will get the bag that the Pac has made you so far going 4-0 to begin the tournament.
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Survive and advance! Go Ducks!
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1 hour ago, SouthHillFrosty said:
Gorgeous morning for March Madness
Hell yeah! Some of the best 2 days of the year.
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2 hours ago, the_convergence_zone said:
I don't want to rehash an earlier conversation but I agree that the dice are loaded against us right now, but there is plenty that can happen between now and July that could reduce wildfire danger or set the stage for a below average wildfire year.
If you have property in a wildfire danger area, you should probably be concerned about every single year going forward.
Oh we're absolutely fuckked in the next decade at some point.
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48F and cloudy.
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Finally got the internet fixed. Took them days but better late than never. Hope y’all are well. Beautiful here in Springfield and 57F.
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48F with clear skies. Hope y’all are having a nice night. Wish my internet would work but we have a wiring issue that the technician has to try to fix on Tuesday morning…ugh this sucks.
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Go Ducks! March Madness baby!!
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Beautiful day incoming. Up to 68F.
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4 hours ago, MR.SNOWMIZER said:
Looking more and more likely to see one last small snow event out here before spring really starts.
You deserve it man. You're one of the most gracious people ever.
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70F burger IMBY in downtown Springfield. Beautiful day.
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Are we really gonna get cold again? Lol.
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1 hour ago, SilverFallsAndrew said:
I got crucified in here for saying Colorado was overrated.
I feel like they are. The Buffaloes resume is mediocre and I feel like New Mexico would beat them on a neutral court. Plus the Mountain West is better than the Pac12.
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March 2024 Weather in the PNW
in West of the Rockies
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We do yes. It’s not too far from the hospital or the house.